ACTIVLIM-CP a new Rasch-built measure of global activity performance for children with cerebral palsy

Bleyenheuft, Yannick;Paradis, Julie;Renders, Anne;Thonnard, Jean-Louis;Arnould, Carlyne
(2017) Research in Developmental Disabilities — Vol. 60, p. 285-294 (2017)

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Objective: Children with cerebral palsy (CP) often have upper extremity (UE) and lower extremity (LE) impairments. While tools measuring separately UE and LE abilities are cur- rently used, activities in which UE and LE are used in combination – numerous in everyday life – cannot be assessed because no instrument allows capturing global activity perfor- mance in children with CP. This study aimed to develop a clinical tool for measuring their global activity performance using the Rasch model. Study design: The caregivers of 226 children with CP (2–18 years old) answered a 154-item experimental questionnaire. Within 4–6 weeks, 129 of them filled in the questionnaire a second time. Responses were analyzed using the Rasch RUMM2020 software. Results: The final 43 item scale presented a high reliability (R = 0.98) and reproducibility (R = 0.97). The item difficulty hierarchy was consistent over time and did not vary according to age, gender, or clinical form, allowing the follow-up of children from 2 to 18 years old. Conclusions: ACTIVLIM-CP is a unidimensional scale specifically developed to measure global activity performance in children with CP providing a reliable tool to follow chil- dren’s evolution and document changes related to neurorehabilitation, especially where a combination of UE and LE is targeted. Its responsiveness is still to be tested.
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Bleyenheuft, Y., Paradis, J., Renders, A., Thonnard, J.-L., & Arnould, C. (2017). ACTIVLIM-CP a new Rasch-built measure of global activity performance for children with cerebral palsy. Research in Developmental Disabilities, 60, 285-294. https://doi.org/10.1016/j.ridd.2016.10.005 (Original work published 2017)