Revealing the complex work of maintenance of the French cancer registrars: how branded “innovations” can fragilize public health?
(2023) 39th EGOS Colloquium: Organizing for the good lige — Location: Cagliari, Italie (6.July.2023)
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- Abstract
- In this communication, we propose to focus on breakdown, repair and maintenance of cancer data in two French cancer registrars in order to learn about the mundane data work and account for “how these disrupt and break the linear, solutionist, and triumphant stories of Big Data” (Pink et al. 2018 p. 11). Our work aims at showing how, through the care for data, Registries’ investigators attempt to rearticulate (Tanweer et al. 2016) the story of the care trajectory of the person with cancer. Unlike clinical epidemiology where the focus is on patient’s bodies which get produced and spread through several medical records (Berg and Bowker 1997), the data work of social epidemiologist is to restore the socio-economic reality (socio-economic data such as environmental, territorial, behavioral, access to care, clinical and biological) of the person to study the social distribution and social determinants of health (Fianu et al. 2022). Hence, we highlight how this work of personification of data comes into tension with the massification of data advocated in the HDH’s branded innovation. To care about health data, the way they do, is to care about the person that data represent somehow.
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Citations
Lambotte, F., Martin-Scholz, A., & Mayère, A. (2023). Revealing the complex work of maintenance of the French cancer registrars: how branded “innovations” can fragilize public health? 39th EGOS Colloquium: Organizing for the good lige, Cagliari, Italie.