Parcours·UD Une étude des besoins en accompagnement et des parcours de soins des personnes ayant des troubles liés à des usages de substances en région bruxelloise
(fr) The study Parcours-Usagers de Drogues (Parcours·UD) was carried out following the study Parcours-Bruxelles from 2018 in order to deepen the knowledge on care needs and care trajectories of people with substance-use disorders (SUD) in the Brussels region. Most people with SUD have multiple and complex needs. However, the organisation of care and support, in Brussels as in other regions of Belgium, is often hampered by several forms of fragmentation that difficult collaboration between care professionals and reduce the system capacity to address such complex needs. Parcours·UD was made of two components, quantitative and qualitative. In the quantitative component, 155 individuals using drugs and utilising care and support services, mainly mental health and addiction services, were involved. Respondents filled out a questionnaire, mainly about met and unmet needs for care and support. The results from the quantitative component made it possible to identify different users’ profiles in terms of need severity. Then, eleven interviews were carried out with people having the most complex profiles in order to identify issues and barriers in care pathways. Out of 23 possible need domains, respondants reported, on average, needs on 9 domains, including 6 unmet need domains. The most reported need domain (met or unmet) was psychological distress. The most reported unmet need domain was intimate relationships. Three users’ profiles were identified: a profile of users with few needs, a profile of users with mainly met needs, and a profile of users with many unmet needs. The first group was composed of relatively older users who often had trouble with alcohol use. Their most reported needs regarded intimate relationships, physical health, accommodation, alcohol use, and food. The second group was composed of younger users and included a larger proportion of cocaine users than in the other groups. These users tend to be in contact with a large range of service types, particularly with outreach services. Their main unmet needs regarded intimate relationships, sexual expression, and looking after the home. Finally, the group that include the people with the highest number of unmet needs was composed of people being 40 years old on average, users of multiple substances, and being less in contact with care and support services. People in that group had a very weak level of social integration, and their main unmet needs regarded psychological distress, money, intimate relationships and company. From the qualitative component, users from the most severe profiles reported issues related to care fragmentation (wrong information and lack of information exchange between professionals), waiting lists, lack of « really listening » in therapeutic relationships, stigma, and a lack of perceived interest from care professionals for topics that do not belong to their expertise field. Globally, findings indicate the strong social isolation of people with SUD, and the numerous problems met by those who were unable to find their place within the care supply, which seems to struggle in order to adapt to different profiles and to achieve collective organisation.
Chantry, M., & Nicaise, P. (2024). Parcours·UD Une étude des besoins en accompagnement et des parcours de soins des personnes ayant des troubles liés à des usages de substances en région bruxelloise. Plate-Forme Bruxelloise pour la Santé Mentale. https://hdl.handle.net/2078.5/238137