Avoir recours à du répit : regards sur la prise de décision des parents d’un enfant gravement malade
(2017) Pratiques Psychologiques — Vol. 24, n° 3, p. 257-275 (2017)
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- (en) [Respite care: Regards on decision making of the parents of a seriously ill child] To address important medical, psychological and social issues, the concept of respite recently developed in Belgium. The service offered by the Villa Indigo in Brussels allows parents to recover from stressful situations while promoting the well-being of their seriously ill children. Noting the parents’ high level of exhaustion when they first contact us, we decided to study the factors that influence their decision to access respite services. The results of ten exploratory interviews conducted with parents of children who have already stayed at Villa Indigo highlight the complexity of their decision, which is influenced by a variety of factors, such as familial support, tiredness and information about respite care, as well as dynamic representations of themselves, their seriously ill children and the concept of respite care. Once they have overcome their initial reluctance to ask for respite care, the benefits are tangible for both the parents and their children, and future stays are rapidly organized.
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Citations
Dubois, A.-C., Cuvelier, S., Murinni, C., & Aujoulat, I. (2017). Avoir recours à du répit : regards sur la prise de décision des parents d’un enfant gravement malade. Pratiques Psychologiques, 24(3), 257-275. https://doi.org/10.1016/j.prps.2017.10.001 (Original work published 2017)