This is the first study investigating the different factors that could impact quality of life in patients with ichthyosis. This provides an essential framework from which physicians can develop strategies to improve patient care and quality of life and to develop a specific quality of life questionnaire.
Mazereeuw-Hautier, J., Dreyfus, I., Barbarot, S., Serrentino, L., Bourdon-Lanoy, E., Ezzedine, K., Maza, A., Aujoulat, I., & Le Rhun, A. (2012). Factors influencing quality of life in patients with inherited ichthyosis: a qualitative study in adults using focus groups. British Journal of Dermatology, 166(3), 646-648. https://doi.org/10.1111/j.1365-2133.2011.10701.x (Original work published 2012)