Measure of changes in daily life activities of children with cerebral palsy following an intensive intervention relationship with cortical changes
(2019)
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- Authors
- Supervisors
- Bleyenheuft , Yannick
- Abstract
- Cerebral palsy (CP) is the first cause of pediatric motor disorder. Children with CP present limitations in activities of daily living (ADL). Their performance can be improved after intensive motor-skill learning interventions, which induce functional improvements in a short period of time. Among these intensive interventions, HABIT-ILE, that combines upper and lower extremities training has demonstrated highly promising results. In order to measure ADL changes in activities that combine the use of the upper and lower extremities, we developed ACTIVLIM-CP, a questionnaire specific to children with CP. This tool matches the criteria of an objective measure, is provided with normative values and has a good sensitivity to changes after intervention. In usual rehabilitation, the child’s performance is recommended to be reported by parents. However, after an intensive intervention, due to the influence of parents’ satisfaction on the measure, we propose to videotape and blindly score the items of the questionnaire. At long term follow-up (18 months after the intensive intervention), parents’ scoring can be used again. Research on the influence of parents’ satisfaction on the child’s measure after intensive interventions seems crucial to interpret the results after such processes. This thesis opens the debate for all questionnaires used in this context.
- Affiliations
UCLouvain SSS/IONS - Institute of NeuroScience
Citations
Paradis, J. (2019). Measure of changes in daily life activities of children with cerebral palsy following an intensive intervention relationship with cortical changes. https://hdl.handle.net/2078.5/124792