Activity of the Alpha-1 Antitrypsin Deficiency Registry in Belgium

Hutsebaut, Jacques;Janssens, Wim;Louis, Renaud;Willersinn, Frank;Derom, Eric;et.al.
(2015) COPD : journal of chronic obstructive pulmonary disease — Vol. 12, n° Suppl 1, p. 2015 (10-14) (2015)

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Authors
  • Hutsebaut, Jacques
    Author
  • Janssens, Wim
    Author
  • Louis, Renaud
    Author
  • Willersinn, Frank
    Author
  • Stephenne, XavierUCLouvain
    Author
  • Sokal, EtienneUCLouvain
    Author
  • Derom, Eric
    Author
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Abstract
A Belgian alpha-1-antitrypsin (AAT) deficiency registry has been established in 2003. Currently 55 patients are included. At the same time, a working group has been set up for publishing national guidelines. In 2014, several Belgian patients founded Alpha-1 Global. We hope that the integrated activities of all the stakeholders involved in AAT deficiency will permit a high quality care for all patients suffering from this disabling disease.
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Hutsebaut, J., Janssens, W., Louis, R., Willersinn, F., Stephenne, X., Sokal, E., & Derom, E. (2015). Activity of the Alpha-1 Antitrypsin Deficiency Registry in Belgium. COPD : journal of chronic obstructive pulmonary disease, 12(Suppl 1), 2015 (10-14). https://doi.org/10.3109/15412555.2015.1021916 (Original work published 2015)