Trisomie 21 en République Démocratique du Congo : de la stigmatisation à la sollicitude. Une lecture du care de Joan Tronto à la lumière de la théologie du handicap d'Amos Yong

Elenge Mpakala, Lazare
(2024)

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Authors
  • Elenge Mpakala, LazareUCLouvain
    author
Supervisors
Jacquemin , Dominique
Abstract
Our research addresses the issue of the inclusion of children with Down's syndrome in the Democratic Republic of Congo through an in-depth reading of Joan Tronto's care ethics in the light of Amos Yong's theology of disability. Until now, these children have been stigmatized and excluded. How can we break the causal link between disability and evil or wrongdoing? How can we move from stigmatization to care, through the mediation of a project to welcome and accompany the children? From a methodological point of view, this study is first and foremost in line with the relational approach of disability theology and the ethics of care. It is complemented by empirical research, particularly from the perspective of the qualitative approach required for data collection and analysis. This is a survey carried out with the aim of involving children with Down's syndrome in the reflection process. Among other things, the survey led to proposals for the creation of a living space for children of all conditions. In order to transform the way the society look at Down’s syndrome children and their parents, the care ethics becomes an indispensable tool. Tronto advocates a world where every human being needs care, a place where people's concern for one another is a basic principle. Yong's theology of disability is a modality of care. It profoundly underpins the ethical shift and radicalizes the change of gaze by replacing stigmatization with the integrative gaze inspired by the adequate representation of a God who has revealed Himself in the mystery of the Incarnation. Amos Yong, who comes from a family that experiences disability with a son who has Down's Syndrome, offers some food for thought on how to build an inclusive community through the power of the Spirit. Tackling a new dogma in line with his theological reflections, the Pentecostal theologian draws on the notion of disabled God. God's vulnerability affects the mystery of redemption through which the crucified God saved the world by dying on the cross: he experienced suffering and weakness. On the one hand, this thesis helps to demonstrate the value of dialogue between the theology of disability and the ethics of care, without confusion of registers. Well-assimilated theological thinking can transform a society's social, cultural and religious attitudes and practices. On the other hand, this research corroborates the idea that a mixed-education center for children from all walks of life is a theological place. It can also, we hope, be a place for transforming outlooks and moving from stigmatization to care for all in Congolese society.
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Citations

Elenge Mpakala, L. (2024). Trisomie 21 en République Démocratique du Congo : de la stigmatisation à la sollicitude. Une lecture du care de Joan Tronto à la lumière de la théologie du handicap d’Amos Yong. https://hdl.handle.net/2078.5/216848