Long-term effects of haematopoietic stem cell transplantation after pediatric cancer: a qualitative analysis of life experiences and adaptation strategies
(2017) Frontiers in Psychology — Vol. 8, p. 704 [1-9] (2016)
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- (en) Haematopoietic stem cell transplantation (HSCT) improves the survival rate of children and adolescents with malignant and non-malignant conditions; however, the physical, psychological and social burden of such a procedure is considerable both during and after treatment. The present qualitative study investigated the long-term effects of HSCT after pediatric cancer. Thirty adolescent and young adult (AYA) survivors (Mage = 23.61 years, SD = 5.21) participated in individual interviews and were invited to speak about their life experiences following their treatment and strategies they use to deal with their past medical experiences and the long-term sequelae. Our results showed the presence of ongoing physical and psychosocial consequences of their past illness and its treatments with wide ranging psychosocial impacts, such as affected self-image, social withdrawal, sense of lack of choice, and need for specific attention. Different strategies were reported to overcome these consequences, such as talking about illness, giving a sense to their past medical experiences, and developing meaningful social relationships. Clinical and research implications are also discussed.
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Lahaye, M., Aujoulat, I., Vermylen, C., & Brichard, B. (2017). Long-term effects of haematopoietic stem cell transplantation after pediatric cancer: a qualitative analysis of life experiences and adaptation strategies. Frontiers in Psychology, 8, 704 [1-9]. https://doi.org/10.3389/fpsyg.2017.00704 (Original work published 2016)